Understanding and improving the care pathway for children with autism

Hurt, L and Langley, K and North, K and Southern, Alex and Copeland, L and Gillard, J and Williams, S.J. (2019) Understanding and improving the care pathway for children with autism. International Journal of Health Care Quality Assurance. ISSN 0952 6862

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Abstract

To describe current care pathways for children with autism including enablers and barriers, as experienced by health professionals, education professionals, and families in South Wales, UK. A mixed-methods approach using focus group discussions, creative writing workshops and visualisation using rich pictures. The experiences of the care pathways differed significantly across the three groups. Health professionals described the most rigidly-structured pathways, with clear entry points and outcomes. Education professionals and parents described more complex and confusing pathways, with parents assuming the responsibility of coordinating the health and education activity in a bid to link the two independent pathways. All three groups identified enablers, although these differed across the groups. The barriers were more consistent across the groups (e.g. poor communication, missing information, lack of transparency, limited post diagnosis services and access to services based on diagnosis rather than need). This research could inform the design of new services which are premised on multi-agency and multi-disciplinary working to ensure children with ASD receive joined up services and support. Although this study did not represent all professional groups or all experiences of autism, we examined three different perspectives of the ASD pathway. In addition, we triangulated high-level process maps with rich pictures and creative writing exercises, which allowed us to identify specific recommendations to improve integration and reduce duplication and gaps in provision.

Item Type: Article
Uncontrolled Keywords: Autism, Rich pictures, Focus group discussions, Creative writing workshops
Subjects: B Philosophy. Psychology. Religion > BF Psychology
L Education > L Education (General)
N Fine Arts > NX Arts in general
Divisions: Faculties > Yr Athrofa – the Institute of Education
Depositing User: Alex Southern
Date Deposited: 23 Jul 2018 10:26
Last Modified: 31 Jul 2019 10:55
URI: http://repository.uwtsd.ac.uk/id/eprint/918

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